| OUR DAUGHTER HEALED OF CANCER|
This is done to thank our Heavenly Father for what he did for us through His Son.
This is a copy of the form that we had to sign, after we as parents decided to stop Bethany's chemotherapy, and trust God for her healing, after prayer and a strong sense of His approval.
Please endure all the medical terms and lenght of this letter, you will be greatly encouraged in the Lord if you do.
I removed the names of the doctor and institutions, but can provide the verified information to those who need it.
Bethany still has not relapsed after more than 1 and a half years, (and will not ever, by God's GRACE)....
CONSENSUS STATEMENT FOR THE ONGOING CARE OF BETHANY KRUGER
Re: Bethany Kruger
Diagnosis: Pelvic rhabdomyosarcoma
Bethany Kruger, is a lovely six year old little girl, currently being treated with intensive chemotherapy at the XXX XXXXX Childrens Hospital Oncology Unit. I have been her primary physician since she was referred to me by Drs XX and XX (paediatricians) in Paarl on 30 November 2009.
Bethany has a left pelvic side wall rhabdomyosarcoma and presented with an abdomino-pelvic mass, predominantly left sided, with a clinical and radiologically proven DVT of the left leg. Her metastatic screen was clear at diagnosis (bone marrow and CT chest).
Bethany started intensive chemotherapy (VACA Rx 6053) on 30 November. The first three intensive cycles were complicated by febrile neutropaenia for which she was admitted to Medi-Clinic in Paarl, which was closer to home. During those periods she was looked after by Dr XX with telephonic support from me.
Re-evaluation prior to tumour resection revealed multiple bilateral pulmonary nodules, 3 in the right lower lobe and three in the left lower lobe. Given that the scan was clear at diagnosis, the nature of these nodules was unclear and after discussion at the Oncology Tumour Board meeting we decided to proceed with resection of the primary mass. This was done by Professor XX on 20 January 2010. Histology showed 80% necrosis with areas of anaplasia in the remaining viable tumour. We discussed this with her parents in light of the new chest CT findings. After international consultation with XX at the xx Clinic in the USA, we decided that the histology alone did not warrant intensifying chemotherapy, unless there was evidence of disease progression on the CT chest at the end of radiotherapy.
After a brief convalescence she received a fourth intensive course of chemotherapy prior to starting local radiotherapy. This was again complicated by febrile neutropaenia requiring IV antibiotics.
She began radiotherapy on the 2 March and continued daily until the 12 April. This was complicated by mild enteritis with tenesmus which resolved after radiotherapy was completed.
A repeat CT chest showed clearing of all the nodules in the right lung and all except one in the left lung. The remaining nodule on the left had not increased in size since the previous study (3.6mm).
It was at this point that Bethanys father raised their concerns about further treatment. According to the provisions of her protocol she still requires 12 cycles (36 weeks) of intensive chemotherapy.
Her father and mother expressed a desire to stop any further intensive chemotherapy, in view of the fact that they felt that she would not tolerate further therapy, both from a physical and emotional point of view. They reflected that they had spent a long time considering the implications of their decision.
WE HAD THE ABOVE CHANGED TO:
Her father and mother expressed a desire to stop any further intensive chemotherapy, due to the harshness of the therapy on Bethany, both from a physical and emotional point of view. For them Bethanys recovery does not rest solely in the hands of chemotherapy, but also in the Hands of God, through faith in His Son, Jesus Christ, their Lord. They reflected that they had spent a long time considering the implications of their decision.
I responded by saying that I was completely opposed to stopping chemotherapy at this point and I have subsequently had a lengthy interview with both parents to explore their concerns and their reason for this decision.
It is my contention that stopping therapy at this point will almost certainly result in relapse at some point in the future.
After consultation with my colleagues, Drs xx and Dr xx we have concluded that we will not offer intensive treatment in the face of a relapse when primary therapy has been interrupted prematurely.
If following a relapse, the parents have changed their minds and wish to pursue more intensive treatment, we will refer them to Tygerberg for a second opinion or they may seek help at another paediatric oncology unit elsewhere in the country.
As Bethanys oncologist, I have agreed to:
1. See her every six weeks in our out-patient clinic. At each visit she will undergo a full clinical examination, basic blood markers and a chest x ray and possibly an abdominal ultrasound. Her clinical condition will guide us in terms of more sophisticated imaging should that be deemed necessary.
2. In the event of a relapse, intensive chemotherapy will not be offered with intent to cure again, at this unit.
3. I will offer palliative therapy only. The primary objective will be to prolong life and to keep her at home whilst her quality of life is still good.
4. I will administer analgesia (and other therapies) for symptom control and I will provide end of life care, if and when that becomes necessary.
I have made the senior Medical Superintendent, Dr XX, aware of the familys decision.
As Bethanys parents, we hereby declare that:
1. We fully understand the implications of our choice not to receive any further chemotherapy for the purposes of curing our daughter of rhabdomyosarcoma.
2. We have been adequately counselled by Dr XX as to the potential risks of our decision. We feel that he has given us adequate opportunity to raise whatever questions we may have had, and that we have been given sufficient time to consider very carefully the decision we have made.
3. We wish to stop further intensive chemotherapy, knowing that this is in direct contravention to the medical advice given to us by Dr XX and the treating physicians at the XX Childrens Hospital Oncology Unit.
4. In the event of a relapse, we understand and agree to the parameters set out in this document, with respect to the further care that Dr XX has agreed to provide.
Head of Unit:
(MBChB(UCT), FC Paeds (SA), CMO (Paeds) (SA))
Paediatric Oncologist, Senior Specialist
XX Childrens Hospital
(Fax) +XX XX XXX XXXX
(Tel) +XX XX XXX XXXX / XXXX
| 2011/10/13 8:24||Profile|
| Re: OUR DAUGHTER HEALED OF CANCER|
Praise God! Thank you for sharing!
| 2011/10/13 9:07||Profile|
| Re: OUR DAUGHTER HEALED OF CANCER|
Praise God for this wonderful testimony of the healing power of Jesus Christ that was manifested in healing your daughter of this cancer. I have heard many such testimonies and have a dear friend whose daughter was healed of cancer.
There is still no cure for cancer as for as the medical profession is concerned. The doctors are doing the best that they can but many times the chemotheraphy and radiation treatments not only attack the the cancer cells but greatly weaken the immune system opening one up to all kinds of sickness and disease.
A Christian needs to seek God's will when faced with any sickness or disease. This applies to all medical treatment. Praise God that our Lord and savior Jesus Christ forgives us for all of our iniquities and heals us from all of our diseases. The Word of God is life to us and it is healing to our bodies.
Praise God that Jesus Christ is the same: yesterday, today and forever.
"Bless the LORD, O my soul: and all that is within me, bless his holy name.
Bless the LORD, O my soul, and forget not all his benefits:
Who forgiveth all thine iniquities; who healeth all thy diseases;
Who redeemeth thy life from destruction; who crowneth thee with lovingkindness and tender mercies;
Who satisfieth thy mouth with good things; so that thy youth is renewed like the eagle's." (Psalm 103: 1-5)
"For His Words are life unto those that find them, and health (medicine) to all their flesh." (Proverbs 4:22).
"I am the Lord thy physician" (Exodus 15:26).
"He was despised and rejected and forsaken of men, a man of sorrows and pains, and acquainted with grief and sickness; and like one from whom men hid their faces. He was despised and we did not appreciate His worth or have any esteem for Him. Surely He hath borne our griefs (sickness, weakness, and distress)and carried our sorrows and pains. yet we did esteem him stricken, smitten of God, and afflicted.But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed." (Isaiah 53: 1-5).
| 2011/10/13 9:17||Profile|
| Re: OUR DAUGHTER HEALED OF CANCER|
Praise the Living God for the healing of your daughter, what a testimony to faith and trust. I found this portion to be quite disturbing........
"After consultation with my colleagues, Drs xx and Dr xx we have concluded that we will not offer intensive treatment in the face of a relapse when primary therapy has been interrupted prematurely.
If following a relapse, the parents have changed their minds and wish to pursue more intensive treatment, we will refer them to Tygerberg for a second opinion or they may seek help at another paediatric oncology unit elsewhere in the country."
Those who have children will appreciate the intense pressure this couple would have been under and undoubtedly judged by some. Shortly after becoming a Christian I was diagnosed with stage three Pulmonory fibrosis ( this is what killed Bill Bright) I was told that there was no cure, a third of each lungs was covered with " irreversable fibrosis." I was put on an intense course of drugs to slow down the progression. I was told that the treatment would cause me real damage over the long term but it was the only known treatment as there was no cure. After two weeks, the Lord spkoke to me and basicly said " trust in me." I came off the treatment. I told the specialist that I was putting my life in Gods hands.
He was very angry. He told me that I would die and that it would not be pleasant. He asked me to come in every other week for chest x-rays so that he could study the " re-gression," as he was part of a national study. After 12 weeks and getting worse, my mother called me from Scotland at 5.30 in the morning. She told me the Lord had told her that He was going to heal me. She was to go to a prayer meeting on the Tuesday night and put forward my name for prayer. She did not know that I had a scheduled x-ray for that Wednesday. I went in and the doctor took a little longer to come in that ususal. He came in and had the x-rays in his hand and put them up on the board.
I will never forget his words. Just prior to flipping on the light of the x-ray board he said this " I dont know what you are going to call this." He flipped on the light and pointed to my lungs and said that they were completly clear. He knew what I was going to call it :) I have multiple x-rays and mri and cat scans for the cynics :) God is still in the miracle working business, praise His name. The most important aspect of all of that was to be able to hear the small still voice of the Lord and follow His directions. We cannot take actions like this unless we know that we have heard from God. I appreciate the fact that the pressures on this couple would have been intense, there was no such pressure, other than my wife and some friends freaking out, for me, because I was dealing with my own life and not the life of a child..........brother Frank
| 2011/10/13 9:55|
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Such wonderful news! Along the lines of Frank's empathy and testimony regarding for the weight of the situation, my own mother almost 20 years ago was faced with a similar choice regarding advanced ovarian cancer. After two treatments she decided to opt out of chemotherapy and fight the desease with repenting of poor diet and pressing hard into God. Her doctor dutifully warned her, that without the treatments she would not survive. While there is no legalistic formula that if followed to the letter is garanteed to heal the body, (including modern medicine) my mother's rallied faith in the Living God afforded her a peace and revival that she never knew in prior health.
And just this morning, visiting from North Carolina, she was sitting in my kitchen, sharing a cup of coffee and memories.
| 2011/10/13 10:10||Profile|
This world is not my home anymore.
| Re: OUR DAUGHTER HEALED OF CANCER|
Praise the Living God!!! Hallelujah to the King of kings and the Lord of lords!! His mercy endures forever!
| 2011/10/13 10:25||Profile|
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What a wonderful testimony.
May God continue to be with your daughter, and give you His Strength, daily.
| 2011/10/13 12:22||Profile|
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Brother Mike writes..........
"And just this morning, visiting from North Carolina, she was sitting in my kitchen, sharing a cup of coffee and memories."
Praise the Living God. I totaly agree that there is no formula and it would be very dangerous to try and formulize this. It must be because the Lord leads, so vital to point that out.........brother Frank
| 2011/10/13 12:28|
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Wonderful testimonies. I am richly blessed for having read these.
Divine healing - would make a good topic for another thread...
God bless one and all...:-)
| 2011/10/13 12:40||Profile|
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Yes, it has been wonderful so far, having all these amazing responses. Tears of joy/ thankfulness / healing / repentance and peace has been flowing freely as I read through them.
I was reminded of something Elizabeth Eliot said Something in the line of.. The things we do for God, can never be as precious as the things that He has done for us.
| 2011/10/13 14:40||Profile|